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#88785 - 09/03/08 08:41 AM Disappointment
dakarah Offline
Member

Registered: 07/09/08
Posts: 61
Loc: KY, USA
I don't really feel much like posting or replying today, I have my hand in a brace and can't type well anyway, but I thought I would share the news. As most of you have read in the nightmare begins, the first three weeks of school for my son, Dakylan, have truely been a nightmare. We have tried so hard, and yesterday we got his mid-term progress report. He had a C in social studies (1 point from a D) and a B in health and p.e., everything else he failed, even band. I am so disheartened that I have cried (as we have worked so hard for these f's). Now, I just want to give up. What's the point of working so hard, sacrificing all of our family time, and ignoring friends and family just to make f's when he can make those without any effort. Everything just feels hopeless at the moment! Sorry to sound so negative, but I'm just feeling that way right now with no real support from anyone since everyone has just suggested punish him, punish him, punish him! It broke my heart last night just to see his disappointment with himself. He sees himself as a failure and says he can't do or learn anything. The psychologist tells me that punishment won't work with him, but rewards don't work either. I guess I just don't know what to do. I am feeling really depressed, myself, right now. Thanks for all of the support that you guys have given me because it has helped me a lot. I can't go on anymore because my hand is hurting, and I can't stop crying. Thanks again!

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#88787 - 09/03/08 09:53 AM Re: Disappointment [Re: dakarah]
March Offline
Member

Registered: 04/02/04
Posts: 133
Loc: Woodbridge, Virginia
Its easy to get discouraged when you are trying ti get the services. The poor grades are really a good thing right now, this shows the school that he needs help. We had to stop helping our son stay focused during the time we were trying to get an IEP. The school kept saying he was an average student so therefore didn't need help. We let him "Fail" for a grading period. It was hard on us all but well worth it in the long run.

Hire an advocate. They are impartial and don't get as emotional while fighting for services. This latest grades could be very useful in your fight.

Good Luck, a lot of us here have been thru this. There is a silver lining waiting.

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#88788 - 09/03/08 10:16 AM Re: Disappointment [Re: March]
Mom4Max Administrator Offline
Member

Registered: 05/03/05
Posts: 3390
Loc: Northern California
I know this is hard but try to focus on what he did right, especially if he is feeling bad. If he has 6 classes, he is passing 3 of them and 2 of them with B's - that is great. This is only a midterm report so that he can see where he needs to put his efforts. This is a tool to improve before the final grades. I am not trying to deny your disappointment, just give you another way to look at this so you all won't feel so discouraged. You can't let him give up now. Perception is everything. I am unclear how he can get an F in band. My understanding is if you show up with your instrument and don't talk through practice you will pass. Can you let us know the subjects he failed in and what the criteria is for those classes?

March gave some very good advice about advocates etc. Try calling your local Autism Society and see what they can tell you about getting one.

Good luck, don't give up hope, we are here for you!

Linda

PS Take care of that wrist, try to rest, there is light at the end of the tunnel. Don't listen to the nay sayers, follow your heart.

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#88790 - 09/03/08 10:54 AM Re: Disappointment [Re: March]
johnblackwell Moderator Offline
Member

Registered: 01/08/07
Posts: 1782
Loc: Fairfax Co. VA USA
Originally Posted By: March
The school kept saying he was an average student so therefore didn't need help.
That's what we kept getting too. "He's not a child at risk!" As far as I can tell, that just means they think he'll pass the next set of NCLB tests, and the school doesn't care about anything else. After all, why should they? NCLB is the only thing putting their jobs at risk, so why worry about anything else?
_________________________
John
http://www.caseint.com/john
"I'm not sure of much of anything these days. Maybe that's why I talk so much." Robert Persig - Zen and the art of Motorcycle Maintenance

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#88791 - 09/03/08 12:29 PM Re: Disappointment [Re: johnblackwell]
Karin Online   content
Member

Registered: 04/28/04
Posts: 247
Loc: Wichita, KS
Just an fyi, for those of you that don't know this - to qualify for special education services, the child not only has to have a specific condition as listed in IDEA (autism being one of them), but it also MUST AFFECT THEIR EDUCATION. If you are in a wheelchair, you are clearly disabled and qualified for an IEP as a person with a physical disability - but if you are a straight A student, it is clearly not affecting your education, and you lose the IEP qualification.

This is not to say that your child doesn't need help - but it may help people understand that the statement 'he's an average student, he doesn't need help' is a valid statement under the law, and what the teacher is REQUIRED to tell you. That doesn't mean that the child may not need extra help in the classroom, and I would certainly hope a teacher would be willing to provide that - but that child is not entitled to special education services.
_________________________
Karin
Kelly (11) dx AS 4/2007
Erin (15) NT (as much as a teenage girl can be :-)

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#88792 - 09/03/08 12:38 PM Re: Disappointment [Re: Karin]
Mom4Max Administrator Offline
Member

Registered: 05/03/05
Posts: 3390
Loc: Northern California
That is interesting. I did not know that is how the law read. When Max first got his IEP his grades were good. They tried to tell me he did not require services because of that. I gave the argument that he spent all his lunch hours and breaks on his own, he was not able to relate to his peers and that education was more than about grades. I told them that at some point his inability to communicate with others would adversely affect his ability to learn as he had to communicate with a more diverse group of people. They gave him his IEP and the speech therapy and counseling he needed to relate to his peers. The irony is that even with the help his grades have gotten worse though his communication skills have gotten better. And many kids have organizational issues as well that will impact them to a much greater degree when they get to middle and high school. The earlier they get help developing skills in these areas the better it will be for all.

Linda

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#88793 - 09/03/08 01:25 PM Re: Disappointment [Re: Mom4Max]
dakarah Offline
Member

Registered: 07/09/08
Posts: 61
Loc: KY, USA
March-thanks, you are right, you have to show that he needs help, but the school already knows he needs help since it was two days before school was over last year and we were still waiting and holding our breath to see if Dakylan would pass. To hire an advocate, I need money that I don't have right now also. I will be better financially in the future, just not right now. I am hoping for the silver lining though! Thanks!

Linda-he failed science, english and math. In math all he had to do was turn in his homework. We did the homework, but apparently he didn't turn it in (even though I wrote him reminders on his hand). In English same thing. I am not sure about science, but I have a meeting with his teachers on Friday morning. In band we had this same problem last year. The teacher gives them a bell ringer-something to write while she take roll and they have 5-10 minutes to set up their instrument and then do the bell ringer. It takes Dakylan the whole time to set up his drum, so he never gets the bell ringers. He also loses points for saying the notes to himself as he is playing. He hates the teacher so much he wants to quit band, but I am hesitant to let him. His brother hated it in middle school, but loves it in high school with the other teacher. Also, I think it is good for him. Linda,thanks, I hope my wrist will get better quickly!!!! Linda-also Dakylan's teachers all talk about his disorganization. It is so bad that it is crazy.


John-Dakylan's school is right now on probation for the next two years because of their testing scores. So, what have they done? They didn't fund tutoring this year, so the students can't get help there, and they try not to help any other student they can. I don't see how they are planning on getting off probation!

Karin-you are so right. It seems like everyone I know thinks you can get an IEP with a dr.'s diagnosis, but that doesn't mean anything if the school says they don't need the help.

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#88809 - 09/04/08 08:30 AM Re: Disappointment [Re: dakarah]
Pandora Offline
Member

Registered: 10/14/07
Posts: 216
Loc: QLD Australia
Is there a different subject he could take instead of band? eg. art? He might not be very interested in playing a musical instrument.

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#88830 - 09/05/08 04:20 AM Re: Disappointment [Re: Pandora]
dakarah Offline
Member

Registered: 07/09/08
Posts: 61
Loc: KY, USA
Pandora-He is sort of interested because he plays guitar hero and rock band sometimes at home with his older brother who loves playing music. (Darian carries a guitar everywhere he goes, and it drives us crazy.) I found out yesterday that something is wrong with his drum, and although the teacher has told him for several days that she will fix it, she hasn't, so I have a meeting this morning, and I'm going to find out if he is losing points because his drum is messed up. He does waver between liking/hating band. Mostly though, he just hates the band teacher. When I posted this thread on Wed. I was so depressed that I had cried and cried over the grades; however, I got a big reality check yesterday that really change my priorities. We had 6 dr. appt.'s yesterday with 3 children, and I found out that my oldest one, Darian, has a tumor. I don't know anything about it yet, and I am scared to death, so at the moment the grades have now become the least thing I care about. Talk about a good dose of what's important in life! I will never get that upset over grades again in my life. I just hope and pray that Darian is going to be okay-his dad died last year from cancer after they found a tumor and diagnosed it as fourth stage lung cancer (only 45), so you can see why I am so afraid. I would greatly appreciate everyone's prayers for Darian, and this board has been such a blessing for me!

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#88835 - 09/05/08 06:15 AM Re: Disappointment [Re: dakarah]
Pandora Offline
Member

Registered: 10/14/07
Posts: 216
Loc: QLD Australia
dakarah, I am so sorry to hear that your big boy has a tumour and pray that it will be benign and easily treatable.

Seems to me to very silly for the school to be giving points for band - it should be an extracurricular activity for the kids to enjoy and that's all.

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#88841 - 09/05/08 07:58 AM Re: Disappointment [Re: Pandora]
johnblackwell Moderator Offline
Member

Registered: 01/08/07
Posts: 1782
Loc: Fairfax Co. VA USA
Dakara, my heart goes out to you and your children. Children can recover remarkably well from what seem at first to be impossible injuries. When my sister was 10, she was hit by a car and dragged underneath for quite a distance. One arm was almost torn off at the shoulder. I saw an Xray of the shoulder taken after it had been patched up - there seemed more metal pins than bone, and it seemed impossible to believe that she would ever use that arm again. Five years later, you had to look very hard to see the scars, and that arm measured slightly better than the other!

I know a tumor is not the same, but I hope this cheers you a little.
_________________________
John
http://www.caseint.com/john
"I'm not sure of much of anything these days. Maybe that's why I talk so much." Robert Persig - Zen and the art of Motorcycle Maintenance

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#88847 - 09/05/08 10:15 AM Re: Disappointment [Re: johnblackwell]
Mom4Max Administrator Offline
Member

Registered: 05/03/05
Posts: 3390
Loc: Northern California
I am praying for Darian and all of you. Please keep us posted. Are you comfortable sharing with us where the tumor is located? I like to pray specifically (how anal am I?). I am sure that it is even more frightening for your family with just losing their dad. Remember, as the airlines say - to take good care of yourself through this, remember put the oxygen mask on yourself first so you can take care of your kids!!!

Linda

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#88866 - 09/06/08 07:52 AM Re: Disappointment [Re: Mom4Max]
dakarah Offline
Member

Registered: 07/09/08
Posts: 61
Loc: KY, USA
Pandora-I agree totally about the band. When I was in band if you played everyday you got an A. That was it! So everyone pretty much got an A.

John-Thanks! Your words did cheer me up because children can quite often overcome things much better than adults.

Linda-Thanks for the prayers! We surely need them. The tumor is inside of his right thigh very close to his groin. We saw the pediatric surgeon yesterday, and we have tests scheduled for Monday, as well. The doctor said if he was a gambling man, he would bet that it is nothing serious, but we have to do the tests to make sure that it nothing serious since you can never be sure. He did say it was definately abnormal, and he didn't mention how he would treat it, so I guess we'll have to wait longer to find that out. I am just holding my breath right now, praying that the doctor is right(in their father's case, the dr.s were often wrong), I guess that oxygen mask might be an especially good idea at the moment! Ha! Ha! Seriously,I really appreciate all of the concern and support on this board. In another post-from the graduate student, one of you guys (Pooh, I think), posted that many here had become like family, and I love that about this board. It is so much more than just a place to get information. Even as a fairly newbee, I can easily see that the members of the board care for each other and try to support each other, even offering differing opinions while respecting each other. What a wonderful place to be!!! Thanks so much for inviting me into your family!!!

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#89081 - 09/14/08 10:20 AM Re: Disappointment [Re: dakarah]
dakarah Offline
Member

Registered: 07/09/08
Posts: 61
Loc: KY, USA
Hey-just wanted to let everyone know that the doctors say Darian's tumor is benign. I have been so relieved, but because of missed meetings last week and a hectic schedule, I haven't had time to sit down and write to let you guys know. Thanks so much for the prayers and concern! The doctors are just going to watch the tumor for now since they don't want to take it out if they don't have to. The are going to re-evaluate it to see if it is getting larger/smaller, changing consistancy, etc.... The surgery to remove it would involve some major blood vessel issues, so they are hoping not to have to do surgery. Well, at least it is benign, and it doesn't really bother Darian in any way. So, now I guess I will have to look back at addressing Dakylan's grades, just hopefully with a different take on things. I did run into one of the teachers he has had a substitute lately, his regular teacher has been absent for a couple of weeks. When Dakylan started to come back from the bathroom he saw her and didn't come in the room. After several minutes, I went to see what was wrong with him, and he was sitting in the back room facing a corner of the wall just staring into space. I told him that after I went to the restroom, he had to come back out to the table with me. When I came out of the restroom, he was gone. I checked outside and in the front room of the restaurant, but no one had seen him. I went back to the back room and found him hiding under a table. He didn't want to come out because the substitute teacher was there, and she had fussed at him at school earlier in the week. I couldn't believe he had hid like that. He told me later that she hates him-he thinks everyone hates him-but I assured him she was just trying to help him do better at school. Also, earlier this week we went to the county fair, and Dakylan had a situation where I took my eyes off of him for a couple of minutes only to look back and see him up in another boy's face in a fighting stance. I quickly addressed the situation by asking what was going on. As Dakylan told me the boy had hit him with something,on purpose, the boy walked away. I told Dakylan that I was sure it had been an accident, and I was going to be mad at him for his reaction when a man walked over to me. He is also a teacher at Dakylan's school, but I had never met him before. He explained that he had seen the whole situation, and Dakylan was telling the truth. He said the boy did hit Dakylan on purpose, and he went on to tell me that at the school dances he watches Dakylan because the other kids hit him, kick him, and make fun of him for dancing-did I mention before that he loves to Michael Jackson dance, Ha! Ha!. He told me that he always stops the other kids from harrassing Dakylan, but it really surprised me that Dakylan loves to go to the dances and looks forward to them so much when everyone seems to treat him badly. One thing for sure, though, I am supervising the next dance he goes to!!! Sometimes I really feel so bad for him as I can't imagine what he must feel like to be doing something he enjoys so much and have to take such abuse from his peers for it. I guess as his parent I just want to protect him and keep from the cruelty of others, but even when I was teaching, it never ceased to amaze me just how mean "children" can be!!!

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#89082 - 09/14/08 10:44 AM Re: Disappointment [Re: dakarah]
BK_G Administrator Online   content
Self diagnosed aspie.
Member

Registered: 01/26/05
Posts: 6510
Loc: Duncan BC Canada
I don't mean to be critical, but...
Quote:
As Dakylan told me the boy had hit him with something,on purpose, the boy walked away. I told Dakylan that I was sure it had been an accident, and I was going to be mad at him for his reaction when a man walked over to me.

If this type of thing happens a few times, in which you distrust his version, he will simply learn to not depend on you, even if he desperately needs to. I am really glad that this teacher talked to you about this, because it shows a major issue that needs to be addressed. Before you write off the 'fussing' the substitute teacher gave him, you might want to check the nature and how severe this 'fussing' was. It may be much more drastic than you were thinking, considering his reaction to her presence.
_________________________
A smile can be infectious. Let's hope they never find a cure.

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#89083 - 09/14/08 10:45 AM Re: Disappointment [Re: BK_G]
BK_G Administrator Online   content
Self diagnosed aspie.
Member

Registered: 01/26/05
Posts: 6510
Loc: Duncan BC Canada
I'm glad the tumor is benign. While not easy to deal with, it is certainly much better than the alternative.
_________________________
A smile can be infectious. Let's hope they never find a cure.

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#89085 - 09/14/08 12:25 PM Re: Disappointment [Re: BK_G]
Mom4Max Administrator Offline
Member

Registered: 05/03/05
Posts: 3390
Loc: Northern California
I am so relieved - I have been wondering what was happening. THank God!

Bart is right. We have to make sure that we don't just assume our kids are in the wrong. Max used to never lie, ever. But I think he learned to because of getting in trouble when he told the truth sometimes or not being believed.

It breaks my heart to hear of his love for dance and the abuse he takes because of it. That teacher is a guardian angel but why this abuse has not been reported and stopped is beyond me. I think your idea of chaperoning the dances is a great one. Just make sure you observe from afar so that Dayklan doesn't feel like his mommy is watching over him. I know Max would hate that!

Maybe you can sign him up for a dance class. So You Think You Can Dance and shows like it have made it a lot more acceptable and cool for guys to take dance class. Wouldn't it be fun if he could have a place where his love for dance was praised rather than ridiculed?

Anyway, good news on the health frontj!

Linda

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#89181 - 09/16/08 02:51 AM Re: Disappointment [Re: BK_G]
Pandora Offline
Member

Registered: 10/14/07
Posts: 216
Loc: QLD Australia
Originally Posted By: BK_G
I don't mean to be critical, but...
Quote:
As Dakylan told me the boy had hit him with something,on purpose, the boy walked away. I told Dakylan that I was sure it had been an accident, and I was going to be mad at him for his reaction when a man walked over to me.

If this type of thing happens a few times, in which you distrust his version, he will simply learn to not depend on you, even if he desperately needs to. I am really glad that this teacher talked to you about this, because it shows a major issue that needs to be addressed.

Before you write off the 'fussing' the substitute teacher gave him, you might want to check the nature and how severe this 'fussing' was. It may be much more drastic than you were thinking, considering his reaction to her presence.
The teacher probably embarrassed him in front of the whole class! Aspie kids are very sensitive and if he's convinced the teacher hates him, he will have trouble with learning anything in her class.

I used to (and still do to a degree) think that anybody who told me off/shouted at me hated me and would avoid them as much as possible for as long as possible.

It's not a normal reaction for a young boy to hide like that unless he is getting some kind of abuse and it certainly is imperative to look into what's going on at school.

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#89225 - 09/17/08 10:16 AM Re: Disappointment [Re: Pandora]
My_Son_Fox Offline
Member

Registered: 08/29/05
Posts: 157
Loc: Kentucky
First I am glad to hear that your other child is ok. That is quite a scare to live through. Second, stress is the number one issue with our kids. I would do everything possible to reduce his stress. I would start with getting rid of band. Just get one of the high school students to give him lessons. That way if he likes it, he can still play in high school.
I have adopted an attitude of believing my son always until someone can prove otherwise. It is important that he know he can count on me. I cannot tell you the number of parents of NT kids that I have told in very harsh words that either their brats knock off the behavior or they will wish they had.
As far as school goes, your kid might just be so bored that he does not care or his executive functioning skills may be so poor that he simply cannot get his homework turned in or his bell-ringer done. That is the school's problem and they need to address it. You will have to make several angry phone calls and visits to get them to do it, but they must make accomodations and find ways to help him to function in the situations that they place him in. If you have the opportunity, I would just go to school with him and go to all his classes. Clear it with the Principal but don't engage the other teachers and just sit in the back of the room and watch and take notes. I would not sit with him at lunch or anywhere else. Just be an observer. Tell your son not to tell anyone you are his mom. You will get a better picture this way. The schools cannot keep you out although they are likely to try. This could give you very good insight into what his day is like. He is unlikely to be able to communicate exactly what he goes through. This way you will know at least some of it. This worked great for my oldest daughter who is bipolar. At the end of the day I knew exactly what I needed to change and things did get better.

Donna

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#89268 - 09/21/08 05:36 AM Re: Disappointment [Re: Karin]
nrsks Offline
Member

Registered: 07/29/08
Posts: 68
Loc: PA
I'm not sure if the laws vary from state to state, but we are in the process of meeting for an IEP. Although My dtr. has relatively no issues at school ( if you pay attention, there certainly s/s of anxiety), because of the magnitude of home issues I insisted the school get on board in April- and yes, we're just now getting around to the "60 days" that they have to evaluate her. Anyway, she does NOT qualify for special ed services (as I knew she wouldn't) but she WILL have an IEP. My understanding is that this is required by law due to the dx of AS. Her IEP has provisions that will make it o.k. for her to chose an altenate activity if a movie/assembly etc. causes her too much anxiety. This may sound odd, but last year she had nightmares for DAYS after being forced to sit through a violent movie for science showing bear attacks. Although it may have been fine for most kids, it wasn't fine for her.

Good luck with the IEP process- as a mom muddling through this system, I know how frustrating it can be!
Kathy

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#89343 - 09/24/08 10:24 PM Re: Disappointment [Re: nrsks]
dakarah Offline
Member

Registered: 07/09/08
Posts: 61
Loc: KY, USA
Thanks everyone for the advice! It has been a while since I have had time to sit down and read the posts and type. It seems like there is too much to get done everyday.

BK_G-I haven't had a chance to talk to the substitute yet, and Dakylan won't really tell me anything except, "She fussed at me." so I don't really know what happened to cause that reaction.

Linda-Dakylan doesn't usually lie to me, but he gives me the facts as he sees them. Ex.-I ask what happened and he says Darian hit me to explain a fight. Then he says he hit him back and so forth. If I can get him to back up and tell me the story from the beginning (by asking the right questions) usually his, "Darian hit me for no reason," turns out to be something like Darian hit him because he threw Darian's guitar in the floor in anger or something like that. He doesn't seem to get that he causes a fight unless he hits first. As for the dance, I would love to get him and my daughter in dance classes; unfortuanately, there is no one in our town who teaches dance. I would love to be able to take him out of town for lessons, but the homework keeps us so busy, it isn't really an option. By the way the school is having a dance Friday, but he says he doesn't want to go. This really shocked me since he usually loves to go to the dances.

Pandora-Last week I got a call from Dakylan's teacher who said he was in ISD. He had written him up because he wasn't getting his work done. He told me that Dakylan also had to stay after school to clean desks because he had written on the desk. I asked to speak to Dakylan, and the teacher reluctantly let me. I asked Dakylan why he had written on the desk. He told me that he was angry for getting sent to ISD. He also told me his teacher sent him there because he hates him. I told him that his teacher was trying to help him probably and did not hate him at all. Dakylan started to cry on the phone and said he would just clean all of the desks. I asked the ISD teacher to let him go to the bathroom because I was concerned that he was crying in front of his classmates in detention also. I thought this would give the bullies some more ammunition, but the teacher thought that he didn't need to leave the room. I was upset that the teacher wouldn't let him go out of the room.

My_son_fox-We have our follow up arc meeting tomorrow. I am anxious to see what his observation results are. What you said reminds me of tonight at parent-teacher conference. Dakylan was standing in the hallway alone with us and wasn't bothering anyone. All of a sudden a boy came up to him and told him he was too old to be carrying a power ranger and playing with it. I told the boy, "I guess that is no concern of yours since he likes the toy and he can decide what he wants to play with. The boy then got rude with me and said, "I don't guess it is your business either. Needless to say that was the straw that broke the camels back.

nrks-we jad a similar situation this summer. Dakylan never watches Scary movies and when we went to see Mirrors, I never dreamed he would watch it, but he did. He was pretty upset about it for days-he even begged me to take down all of the mirrors in the house.

Also a big thanks to all who prayed for my older son Darian. Well, tomorrow I have another arc meeting and maybe Dakylan will get placed on an IEP since I don't want him in ISD for several days again.

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#89347 - 09/25/08 07:02 AM Re: Disappointment [Re: dakarah]
Pandora Offline
Member

Registered: 10/14/07
Posts: 216
Loc: QLD Australia
Unfortunately, here is yet another kid caught up in an adversarial situation at a school and it should never have happened. I don't think it's appropriate to send a child to detention if they don't even understand why they are there or if the behaviour would be allowed to pass if it were any other child.

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#89351 - 09/25/08 11:36 AM Re: Disappointment [Re: Pandora]
dakarah Offline
Member

Registered: 07/09/08
Posts: 61
Loc: KY, USA
Pandora-I hated that he had to go to ISD just because his work wasn't completed. Most of the students there are in there for causing trouble in class, and all of his teachers say he is not a discipline problem. But... A big "YEAH" today! We had his meeting, and it went great!!!! We talked for almost an hour about modifications for him when the principal stated, "I think at this point we need to put in the minutes that he is being placed in special ed. No one had any doubt, at that point. Between the school psychologist and her reports and the occupational therapist and her reports, everyone involved was able to see how overwhelming some things are for Dakylan. We agreed on several modifications-effective immediately-to help him transition better, and become more organized. None of us felt like he really needed modification in doing the assignments, just more help staying on task, getting started, stuff like that. The occupational therapist was really good at explaining how Dakylan was trying to deal with sensory issues and function with his classwork at the same time. She told them to imagine they had pneumonia and were deathly sick, and someone told them, "Well, while you're sick, here copy these questions down and answer each one with a full paragraph answer." That really amazed everyone. The principal even said she felt ashamed because she had never understood what he must be going through at school every day. We decided to leave him in the regular classroom, with the option to take him to the resource room, if needed. Now he won't have to go back to ISD to finish his work ever again. He will just go to the resource room if he isn't finished. Needless to say, I was walking in the clouds when I left the office. I think now he may actually get some help and be able to show what he is really capable of (the math teacher did say that she expected him to possibly be one of her distinguished math students on the CATS testing). We also agreed to meet back if we felt the modifications needed modifying. I am just so excited because I dreaded today and fully expected it to be a replay of "He's not trying, he's not focusing, he's irresponsible, etc.... Just when I thought the light at the end of the tunnel was a train coming the other direction, it turned out to be the opening!!! Also, one other thing the OT recommended was some kind of a vest to wear under his clothes that gives a sense of tighting with every breath. She said this might fix his need to carry around that 100lb.(Ha! Ha!) backpack. Has anyone heard of this or how well it works? The school is looking into purchasing one for him. How great is that. They are also going to get him a workbook that helps him work through some of his sensory issues. I just wish we had this kind of help and support when he started school. There is no telling what kind of a difference it could have made for him. On a less great note we discussed how he could fall asleep even at the circus, and the OT explained that too much stimulation could cause him to shut down and go to sleep, which was great to know, but really makes me think about whether or not we should have gotten tickets to the circus tonight. Well, if he falls asleep this time, I'll leave him home next time. And to think, I thought we were making progress with the circus-twice when he was younger we bought tickets just so I could sit outside with him while his father and brother enjoyed the circus because he would scream if I tried to take him inside. Well, I guess we'll just have to wait and see how tonight goes!

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#89352 - 09/25/08 12:22 PM Re: Disappointment [Re: dakarah]
Mom4Max Administrator Offline
Member

Registered: 05/03/05
Posts: 3390
Loc: Northern California
I am in tears I am so happy for you and Dayklan - GREAT job. Way to persevere and get what your son needs! I am so proud of you and pleased that the school is also stepping up and doing the right thing. It is a good day!!!

Linda

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#89354 - 09/25/08 12:30 PM Re: Disappointment [Re: Mom4Max]
cbmj Offline
Member

Registered: 11/13/06
Posts: 83
Loc: moonstone, ON, Canada
Wonderful news!!!it really sounds like the staff at your school have now opened there eyes to Dayklan's needs.
I haven't heard of the vest but I know there are weighted blankets available out there. Bonnie

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#89358 - 09/25/08 01:18 PM Re: Disappointment [Re: cbmj]
johnblackwell Moderator Offline
Member

Registered: 01/08/07
Posts: 1782
Loc: Fairfax Co. VA USA
Great going!!
_________________________
John
http://www.caseint.com/john
"I'm not sure of much of anything these days. Maybe that's why I talk so much." Robert Persig - Zen and the art of Motorcycle Maintenance

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#89359 - 09/25/08 01:50 PM Re: Disappointment [Re: johnblackwell]
BK_G Administrator Online   content
Self diagnosed aspie.
Member

Registered: 01/26/05
Posts: 6510
Loc: Duncan BC Canada
Excellent news. And, regarding the circus, take along sun glasses and ear plugs. Even a towel to put over his head if it gets to be too much for him. Believe me, just reducing the volume and light levels can help a lot. When I go to a show (not too often, but I do) I will often sit with fingers in ears for a while, or shut my eyes for a bit. People think I'm falling asleep, but I'm not, I'm fully aware, but just reducing the input.
_________________________
A smile can be infectious. Let's hope they never find a cure.

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#89360 - 09/25/08 03:37 PM Re: Disappointment [Re: BK_G]
Megan66 Offline
Member

Registered: 01/03/08
Posts: 254
Loc: KY
Great news!!!!!! As for the circus..Bart has the right idea..maybe even a hoodie too.

Megan

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#89361 - 09/25/08 05:32 PM Re: Disappointment [Re: dakarah]
pooh30 Offline
Member

Registered: 03/17/08
Posts: 149
Loc: Pennsylvania
Dakarah,
My prayers are with you and your family. You have every reason to be scared. Sometimes we forget the most important things and the little things upset us. I know you are having bigger issues, but we are also having problems STILL, with Jacob. He's not applying himself, and what makes us mad, he won't try. Homework time turns into, "I have to go to the bathroom, I need a drink, I need a snack, excuse excuse excuse! I'm ready to rip out my hair.
_________________________
POOH30

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#89362 - 09/25/08 06:35 PM Re: Disappointment [Re: pooh30]
BK_G Administrator Online   content
Self diagnosed aspie.
Member

Registered: 01/26/05
Posts: 6510
Loc: Duncan BC Canada
Whatever task my mother set, at whatever time was allocated, would be moved EARLIER each day, by the amount of time I waffled and didn't work on it. 15 minutes of dawdling, and I could expect to start 15 minutes earlier, to allow for the dawdle time I obviously needed. It didn't take too many consequences like that before it became obvious I was going to lose the battle.
_________________________
A smile can be infectious. Let's hope they never find a cure.

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#89365 - 09/26/08 07:43 AM Re: Disappointment [Re: pooh30]
Pandora Offline
Member

Registered: 10/14/07
Posts: 216
Loc: QLD Australia
Originally Posted By: pooh30
Dakarah,
My prayers are with you and your family. You have every reason to be scared. Sometimes we forget the most important things and the little things upset us. I know you are having bigger issues, but we are also having problems STILL, with Jacob. He's not applying himself, and what makes us mad, he won't try. Homework time turns into, "I have to go to the bathroom, I need a drink, I need a snack, excuse excuse excuse! I'm ready to rip out my hair.
You know, the more you push him, the more he will get nervous and have problems. It's better to ease up a little. In the long run, it will be less aggravation for everybody.


Edited by Pandora (09/26/08 08:19 AM)

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#89366 - 09/26/08 07:47 AM Re: Disappointment [Re: dakarah]
Pandora Offline
Member

Registered: 10/14/07
Posts: 216
Loc: QLD Australia
Originally Posted By: dakarah
Pandora-I hated that he had to go to ISD just because his work wasn't completed. Most of the students there are in there for causing trouble in class, and all of his teachers say he is not a discipline problem.

But... A big "YEAH" today! We had his meeting, and it went great!!!! We talked for almost an hour about modifications for him when the principal stated, "I think at this point we need to put in the minutes that he is being placed in special ed. No one had any doubt, at that point.

Between the school psychologist and her reports and the occupational therapist and her reports, everyone involved was able to see how overwhelming some things are for Dakylan. We agreed on several modifications-effective immediately-to help him transition better, and become more organized.

None of us felt like he really needed modification in doing the assignments, just more help staying on task, getting started, stuff like that. The occupational therapist was really good at explaining how Dakylan was trying to deal with sensory issues and function with his classwork at the same time.

She told them to imagine they had pneumonia and were deathly sick, and someone told them, "Well, while you're sick, here copy these questions down and answer each one with a full paragraph answer." That really amazed everyone. The principal even said she felt ashamed because she had never understood what he must be going through at school every day.

We decided to leave him in the regular classroom, with the option to take him to the resource room, if needed. Now he won't have to go back to ISD to finish his work ever again. He will just go to the resource room if he isn't finished. Needless to say, I was walking in the clouds when I left the office.

I think now he may actually get some help and be able to show what he is really capable of (the math teacher did say that she expected him to possibly be one of her distinguished math students on the CATS testing). We also agreed to meet back if we felt the modifications needed modifying. I am just so excited because I dreaded today and fully expected it to be a replay of "He's not trying, he's not focusing, he's irresponsible, etc.... Just when I thought the light at the end of the tunnel was a train coming the other direction, it turned out to be the opening!!!

Also, one other thing the OT recommended was some kind of a vest to wear under his clothes that gives a sense of tighting with every breath. She said this might fix his need to carry around that 100lb.(Ha! Ha!) backpack. Has anyone heard of this or how well it works? The school is looking into purchasing one for him. How great is that.

They are also going to get him a workbook that helps him work through some of his sensory issues. I just wish we had this kind of help and support when he started school. There is no telling what kind of a difference it could have made for him.

On a less great note we discussed how he could fall asleep even at the circus, and the OT explained that too much stimulation could cause him to shut down and go to sleep, which was great to know, but really makes me think about whether or not we should have gotten tickets to the circus tonight. Well, if he falls asleep this time, I'll leave him home next time.

And to think, I thought we were making progress with the circus-twice when he was younger we bought tickets just so I could sit outside with him while his father and brother enjoyed the circus because he would scream if I tried to take him inside. Well, I guess we'll just have to wait and see how tonight goes!
Dakarah, I'm very happy for you and your son. It must be a big weight off your mind that finally somebody has listened to your concerns.

There is always a logical reason for aspie kids to have trouble at school but it takes detective work and openness to new ideas for the reason to come to light.

I'm also finding sensory issues to be a bit of a problem at work because what I do requires a lot of concentration and I easily get distracted by noise and lights and temperature and smells.

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#89368 - 09/26/08 08:14 AM Re: Disappointment [Re: Pandora]
Karin Online   content
Member

Registered: 04/28/04
Posts: 247
Loc: Wichita, KS
You can get pressure vests here:
http://www.specialkidszone.com/Product_Level2.asp?SubCategoryID=104

and weighted vests, blankets, etc:
http://www.specialkidszone.com/Product_Level2.asp?SubCategoryID=103

That is SO cool that they are finally seeing the light and working with you!
_________________________
Karin
Kelly (11) dx AS 4/2007
Erin (15) NT (as much as a teenage girl can be :-)

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