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#98422 - 03/10/10 02:48 AM
Just found out my daughter has as, or pdd. nos
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Member
Registered: 03/05/10
Posts: 11
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Hello Well a few weeks ago I found out my daughter has AS and like most parents I started loking in every direction for help on whats next. A little about her, we call her Boogie because as soon as she learned how to crawl she was in fast forward not to be left behind by 3 slightly older sisters. She is 7 yrs. old and she is very good with her school work, but has a hard time with social skills. She is very funny,lots of smiles. One thing I'm concerned about is My company is shutting down and I am loosing my insurance soon,I have been told that she will need training in social skills,and also give myself and the family some support and help on how to make things go smoothly. But don't know if that will happen without insurance. I have so much to say and ask,but for now a cute story before I go. I took boogie to the doctor to be refered out, I told him some things that were going on, so he came in the room and asked her how she was? She said fine, asked here what school she went to? she told him, asked her teachers name? she replied,asked if she had gotten in any trouble at school?she said no(well that was not so true but i had already told him about that)asked if she was being bullied? she said no. Asked how school was going? She said well you know the #1 is tricky,He said really, tricky like hard tricky or easy and boogie said well kind of easy but if you turn it sideways and then put another one up and down its a plus sign.One of those things she does that just makes me smile. Thanks for your time.
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To the world you may be one person, but to one person you may be the world..
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#98424 - 03/10/10 03:37 AM
Re: Just found out my daughter has as, or pdd. nos
[Re: Sunshine mom]
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Member
Registered: 07/24/09
Posts: 624
Loc: near the casinos, connecticut
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Hello welcome to the board. stick around a while and you will probably learn more here than just about anywhere else. why? because we are aspergers, we eat sleep and live this every day. we are either aspies or have a close family member who is. be assured that there is probably someone here who has or is going through the same struggles that you are facing. we will be more than willing to help out as much as possible with advice or suggestions. sometimes it is good advice or other times it isn't. we are usually very blunt and straightforward. so if she was diagnosed as having aspergers why do you have it as possible AS or pdd-nos? "She said well you know the #1 is tricky,He said really, tricky like hard tricky or easy and boogie said well kind of easy but if you turn it sideways and then put another one up and down its a plus sign.One of those things she does that just makes me smile" that is one of our endearing trademarks. we look at the world from a totally different perspective than other people. we see things in different light or angle. you've got a very special daughter, she has a gift that most people don't have. unfortunately it can be a challenge too. we have a hard time dealing with understanding other people's feeling or emotions. trust me, I am living in turmoil right now because of it. I think it is something we might be able to overcome but it isn't easy. I'll let you know how I make out. 
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A smart man learns from his mistakes while a wise man learns from the mistakes of others.
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#98426 - 03/10/10 07:23 AM
Re: Just found out my daughter has as, or pdd. nos
[Re: I am not crazy]
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Member
Registered: 08/26/04
Posts: 4120
Loc: Germantown, MD
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Hi and welcome! Autism Society of America Chapters might be a good place to start. Autism organizations usually have free or reduce cost services. Financial Assistance (MedlinePlus) is another good resource to check out. If you would like, you may Private Message (PM) me and I'll help you to find local or state resources - your state's health department might also have resources that you can use. Most states also have a "Disability" or something similar department that might have some resources, too. You can also teach her social skills at home. Your public library might either have social story or social skill books available or books that can be interlibrary loaned from another library. The basic gist of social skills is in explaining the "how to the hows" and the "why to the whys". In other words, she might need that extra step when you're explaining things because she may not "get" the social concept behind what you're saying. I'm not the best at explaining it, but may be other parents here can help. You might also want to read our A Welcome Letter to Parents. A really good book for kids with AS is called "All Cats Have Aspergers Syndrome" by Kathy Hoopmann. One of our members recently wrote a post on it: Great kids book about Asperger Good luck - she certainly sounds like a cutie! And, yes, those one's are tricky - so are the number 6's and 9's! - Serenity
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And both that morning equally lay In leaves no step had trodden black. Oh, I kept the first for another day! Yet knowing how way leads on to way, I doubted if I should ever come back. Frost's The Road Not Taken
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#98433 - 03/10/10 03:11 PM
Re: Thanks for the welcome
[Re: Serenity]
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Member
Registered: 03/05/10
Posts: 11
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Thank you for the welcome, I knew that saying she has as, or pdd nods was a sticky thing but her is my reason. I've only been to a psychologist twice, He said she has aspergers,but when I tried to get her into were he recommended (VMRC) getting her further tested they said it could be other things like pdd nos, and they don't accept a diagnosis from a psychologist, it has to come from a doctor with a PHD. And got the same response from the school. My intuition is she has as,just a few more things she does, last year in kindergarten they had to line up before school and she HAD to be the first on in line or it was crisis time she would get very upset, After every shower when the water is turned off she has to take a drink from the last few drops dripping from the shower head no matter how much in a hurry we are in. Some times when she does get into trouble and i send her to her room she will have a full conversation or argument like someone is there.That does not happen alot but it has enough to where I have notice its different from the other kids. She likes to share but only for a few minutes then she wants things back. The eye contact I really started to notice when I tried to change up how I talked to her and one day when she had gotten in trouble I got down at her level and tried to explain what was going on and why she got in trouble and she would look anywhere but in my eyes and in the middle of me talking to her she cuts in and asks if I can read her a book or if I remember when we did something.Sometimes she goes Thur a bout with waiting to long to go to the bathroom and would rather wet her pants than stop what she's doing.She loves to play by herself and can do so for hours, just recently she has been putting together Lego's,she maid a horse and it was awesome I don't think i could have done it,and she also got a simple snap together little rubber jewelery kit and loves making them, she maid me a necklace which I had to hang on my door nob for at least a month. It would bang on the door which maid it hard to sneak up on them and check n see how they were doing, but if I took it off it was right back on there as soon as she noticed it. I have to say I am so excited to have found this web site and look forward to lots more conversations. I'm not the best at explaining things myself so please bare with me.I am also just trying to put everything together like what she does so I can get the proper diagnosis and do the best that I can do for her, so she can be or do anything she wants. She is so bright and so Funny, I wouldn't want her any other way! One more thing that worries me is I saw where aspies can get depressed because there intelligent enough to know somethings wro
Edited by Sunshine mom (03/10/10 03:28 PM)
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To the world you may be one person, but to one person you may be the world..
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#98443 - 03/10/10 07:17 PM
not for sure where i respond
[Re: I am not crazy]
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Member
Registered: 03/05/10
Posts: 11
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A little help please, Im not for sure if I need to reply directly to you or just on the board I would like to soak up as much info as I can. thanks
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To the world you may be one person, but to one person you may be the world..
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#98445 - 03/10/10 07:37 PM
Re: not for sure where i respond
[Re: Sunshine mom]
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Member
Registered: 07/24/09
Posts: 624
Loc: near the casinos, connecticut
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you can either post it here on the board and we can respond to you or you can send a private message to me directly I will return it as soon as possible I promise. it is rather easy to send a private message. ask away, most of us here love to help new people here. we were once new and needed a lot of information as you do. some of us stay active here because we've made friends and like to keep in touch and updated.
_________________________
A smart man learns from his mistakes while a wise man learns from the mistakes of others.
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#98449 - 03/10/10 08:30 PM
Re: not for sure where i respond
[Re: I am not crazy]
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Member
Registered: 03/05/10
Posts: 11
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Thank you, Ive got some good info on places her in Cali that I have to do some homework on. From what I'm hearing its i bit of a struggle.
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To the world you may be one person, but to one person you may be the world..
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